Announcing BMP winner: MyBrainNet by Dystonia Europe, a central platform for neurological brain diseases, providing information to patient groups and patients to help improve their quality of life.

MyBrainNet empowers people with neurological brain disorders by connecting them with other patients, and providing accurate and unbiased information about their disease.

The tool provides a digital diary for patients to keep track of their daily activities in relation to the disease. This has already proven to be an invaluable tool during appointments with the neurologist and other medical professionals.

Users can choose to share his/her data collected through the diary with the scientific community for research purposes. If a user chooses to do so, the data will anonymously be stored in a searchable database which can be used for scientific research, now and far into the future. Our aim is to retain all anonymised data for an indefinite period of time. With the growth of the amount of data in this database, the usefulness of and possibilities with the information increases over time.

Besides the option to fill in the diary by hand we envision the possibility to connect several types of wearable devices. These devices can automatically gather valuable information, which combined with the diary information, will provide a unique set of data invaluable to most research projects.

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MyBrainNet presented in  the “PATIENT ADVOCACY IN THE DIGITAL WORLD” workshop

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BMP Grant 2018 Winner: MyBrainNet